This is my first attempt at putting together a video to help us bring awareness to newborn screening. Please let me know what you think. Remember to go down to my playlist and turn it off.
About Me
- Nicole
- I am the mom of 4 boys. My youngest, Greyson, was diagnosed with Krabbes Disease. He left his broken body behind on 12/12/08, just six days shy of his 1st birthday. I am a Special Education teacher. My husband is a pediatric nurse. We have been married for 16 years. Together, with the help of many, we have used Grey's life and loss to try to expand Texas' newborn screening program. HB 1795 was signed by Governor Rick Perry on 6/19/09, establishing Greyson's Law. However, it lost it's funding before even one baby was screened. We have established Grey's Gift Memorial Foundation to teach other of the importance of newborn screening.
4 comments:
Truly amazing! You did a great job. I love it.
WOW. very powerful. I know that you are going to help so many babies in TX! You are really making a difference!
What a powerful message. Great job!
Can you send this to me? My email is dunlap9499@gvtc.com
I want to post it!
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