Dear Grey Grey,
I put together two videos of you and posted them to YouTube today. It took me forever. I thought if I stayed busy enough, I wouldn't miss you as much. I was wrong.
But, you can search "Greyson Morris Krabbes" and these will come up. Who would have ever thought you'd be on YouTube? Crazy.
http://www.youtube.com/watch?v=a7usH3QQZzg Grey's Gift
http://www.youtube.com/watch?v=RavCN5knWnM Who Knew?
Love,
Forever Your Mom
About Me
- Nicole
- I am the mom of 4 boys. My youngest, Greyson, was diagnosed with Krabbes Disease. He left his broken body behind on 12/12/08, just six days shy of his 1st birthday. I am a Special Education teacher. My husband is a pediatric nurse. We have been married for 16 years. Together, with the help of many, we have used Grey's life and loss to try to expand Texas' newborn screening program. HB 1795 was signed by Governor Rick Perry on 6/19/09, establishing Greyson's Law. However, it lost it's funding before even one baby was screened. We have established Grey's Gift Memorial Foundation to teach other of the importance of newborn screening.
1 comment:
Those turned out really good. Grey would be so proud of the work you are doing!
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