Help me celebrate Grey's Gifts. Life is short, but sweet for certain.
Sunday, December 20, 2009
Grey's Gingerbread House
Last year when we lost Grey, we decided that every year on his birthday, we would make him a gingerbread house. Here is this year's. It's not a masterpiece, but it was done with love. We miss you Baby!
I am the mom of 4 boys. My youngest, Greyson, was diagnosed with Krabbes Disease. He left his broken body behind on 12/12/08, just six days shy of his 1st birthday. I am a Special Education teacher. My husband is a pediatric nurse. We have been married for 16 years. Together, with the help of many, we have used Grey's life and loss to try to expand Texas' newborn screening program. HB 1795 was signed by Governor Rick Perry on 6/19/09, establishing Greyson's Law. However, it lost it's funding before even one baby was screened. We have established Grey's Gift Memorial Foundation to teach other of the importance of newborn screening.