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About Me
- Nicole
- I am the mom of 4 boys. My youngest, Greyson, was diagnosed with Krabbes Disease. He left his broken body behind on 12/12/08, just six days shy of his 1st birthday. I am a Special Education teacher. My husband is a pediatric nurse. We have been married for 16 years. Together, with the help of many, we have used Grey's life and loss to try to expand Texas' newborn screening program. HB 1795 was signed by Governor Rick Perry on 6/19/09, establishing Greyson's Law. However, it lost it's funding before even one baby was screened. We have established Grey's Gift Memorial Foundation to teach other of the importance of newborn screening.
1 comment:
8/29/2009
Nicole,
When I ran into you today I had NO earthly idea what all you have been through because last I knew you were pregnant with Greyson.
I admire everything you and your wonderful Bill have done to make it so that other children never have to go through the loss of a child to this dreaded disease like your family has.
I wish I could have been there for you like you have been there for me and my child in the past. I just didn't know.
Thanks so much for sharing Greyson's story, for making such a huge difference to all of the other Texas babies who will NOT ever have to suffer or leave their families in such a state of grief long before their time.
Greyson was a beautiful child, inside and out and while I believe he was put on this earth to two parents God knew would fight for better screenings, I still just canNOT even begin to put myself in your shoes.
You know I have a special needs kiddo and life has been real hard, especially lately, but hearing your story makes me stand back and appreciate the 15 years I've had with my son, that at times, I certainly have NOT appreciated fully.
You are a wonderful wife, mother, and daughter and I'm proud to have gotten to know you as one of the best content mastery teachers my son ever had. I'm grateful that you are once again able to return to work and do what you do best.
May Greyson be free to be with those in his family who have passed before him and may you have the positive attitude you have gotten even through the difficult times of losing a child.
My heart goes out to you and your family. I'm so glad you told me about Greyson. I had NO idea. And, as I sit and cuddle with my 1 year old grandson, whom I adore and keep every day I will remember to give him one more hug, one more kiss, and tell him one more time how much I love and cherish him. That goes for all of my grandchildren and for my 15 year old son with autism.
God Bless You and Yours,
Gayle K. (Kristopher's mom)
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