Bill and I are honored to be appearing with Senator Uresti on San Antonio Living this coming Thursday, the 16th, at 10:00 am.
It seems like only yesterday Bill and I were there discussing the possibility of Greyson's Law. Now it's a reality, thanks to Senator Uresti, Representative Pierson, their staffs, and all of you. Not only have you helped us to make history, you've given our Grey a lasting legacy that will save countless little Texans.
1 comment:
Hi, my name is Amanda Craig. I just found your story and Greyson's Law while researching how testing for some of these disease came about. We just lost our little boy, Brinley, in April. He was 15 months old. He had MPS Type I-H. Otherwise known as Hurler Syndrome. This is a recessive disorder that is not tested for. He was officially diagnosed at 10 months. He does have a couple websites, www.brinleycraig.com and www.caringbridge.org/visit/brinleycraig. Feel free to visit them if you would like. I hope that everything works out for you. I too am fighting for testing. We are just getting started. You are great inspiration! Thank you for your fight for children's lives.
Post a Comment