Dearest Grey,
I know that you are at peace. And as the craziness and sadness of your loss tries to engulf me, I remind myself that I too am at peace, because you are finally at peace.
Sweet dreams Little Man. I love you.
Love,
Forever Your Mom
About Me
- Nicole
- I am the mom of 4 boys. My youngest, Greyson, was diagnosed with Krabbes Disease. He left his broken body behind on 12/12/08, just six days shy of his 1st birthday. I am a Special Education teacher. My husband is a pediatric nurse. We have been married for 16 years. Together, with the help of many, we have used Grey's life and loss to try to expand Texas' newborn screening program. HB 1795 was signed by Governor Rick Perry on 6/19/09, establishing Greyson's Law. However, it lost it's funding before even one baby was screened. We have established Grey's Gift Memorial Foundation to teach other of the importance of newborn screening.
COunter
2 comments:
You are right, we just need to remember that now Grey is no longer fighting the disease. He is happy and playing with the other babies in Heaven. Believing is what helps bring peace...at least for me. I believe that he is healthy and at peace. Love You...
Hello,
My name is Sabrina Gavriilidis. I have been reading your blogs for the past week or so. Your son Grey is so beautiful. That smile has simply melted my heart. How lucky your are to have had that smile for so long.
My daughter, Zoe, is currently living with krabbes disease. She was diagnosed at 6 months. She will be 16 months this Saturday. Zoe lost her smile... around 8 months. When I look at Grey's pictures, I long for my daughter's smile.
I am so sorry for your loss. When your son left, the world suffered a loss.
Your entries are so touching. Tears are flowing. Wish I could give you a hug.
xoxo-Sabrina (Zoe's mommy)
www.caringbridge.org/visit/zoealexis
Post a Comment