Dearest Grey,
I hear people's love for you in their voice as they mention your name. I see it in their smile as they tell me a fond memory and in their tears as they cry. Even in your absence you continue to touch people.
I'm stuck somewhere between pride and heartache, too numb to feel either. At times I'm afraid to let myself feel anything at all.
The Herald came out to the house this evening, to write a story about you. As angry as I am that you even have a story to tell, I'll keep telling it. I need this to be huge Grey. I need you to make a difference. Only then will your loss be livable.
Love,
Forever Your Mom
About Me
- Nicole
- I am the mom of 4 boys. My youngest, Greyson, was diagnosed with Krabbes Disease. He left his broken body behind on 12/12/08, just six days shy of his 1st birthday. I am a Special Education teacher. My husband is a pediatric nurse. We have been married for 16 years. Together, with the help of many, we have used Grey's life and loss to try to expand Texas' newborn screening program. HB 1795 was signed by Governor Rick Perry on 6/19/09, establishing Greyson's Law. However, it lost it's funding before even one baby was screened. We have established Grey's Gift Memorial Foundation to teach other of the importance of newborn screening.
COunter
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