I'm afraid to wash his clothes. I've worn the same shirt since Friday. I'm so afraid I'll forget what he smelled like.
I miss you Monkey.
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About Me
- Nicole
- I am the mom of 4 boys. My youngest, Greyson, was diagnosed with Krabbes Disease. He left his broken body behind on 12/12/08, just six days shy of his 1st birthday. I am a Special Education teacher. My husband is a pediatric nurse. We have been married for 16 years. Together, with the help of many, we have used Grey's life and loss to try to expand Texas' newborn screening program. HB 1795 was signed by Governor Rick Perry on 6/19/09, establishing Greyson's Law. However, it lost it's funding before even one baby was screened. We have established Grey's Gift Memorial Foundation to teach other of the importance of newborn screening.
COunter
4 comments:
{{{{Nicole}}}}How I wish there were words, how I wish it made sense. I'm praying for you now.
I love you Nic!
Nicole my heart goes out to you and your family. YOU are truly an inspiration to many. I thank you so much for allowing me to be apart of your lives for the 1.5 hours to capture who you were as a family. I pray for you everyday and you are in my thoughts. I keep the pictures on my computer to remind me just how precious life is and to remind me to hug my girls a little tighter each day. So thank you for how you have blessed my life, there aren't enough words. I wish you and your husband peace. Stacy Sellers
i just stumbled upon your blog and sit here weeping as i type. i am so incredibly sorry for the loss of your sweet baby boy. thank you for the reminder to love my children every second of the day. i will be praying for you and your family.
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