I am the mom of 4 boys. My youngest, Greyson, was diagnosed with Krabbes Disease. He left his broken body behind on 12/12/08, just six days shy of his 1st birthday. I am a Special Education teacher. My husband is a pediatric nurse. We have been married for 16 years. Together, with the help of many, we have used Grey's life and loss to try to expand Texas' newborn screening program. HB 1795 was signed by Governor Rick Perry on 6/19/09, establishing Greyson's Law. However, it lost it's funding before even one baby was screened. We have established Grey's Gift Memorial Foundation to teach other of the importance of newborn screening.
3 comments:
Oh my goodness..... who did this? What an amazing thing..... unbelievable!!!!
The sign is awesome!! I am sure Grey loves it!!!!
Nicole.... Brayden asked to write Riley... I dictated what he said.... could you please pass it on.
Riley,
I am sad about your brother. I miss you. I love you. Your very best friend, Brayden.
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