Below is the story that covers our day at the Capital. Thanks Jenny and Chris from KXAN. You guys did an awesome job!
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About Me
- Nicole
- I am the mom of 4 boys. My youngest, Greyson, was diagnosed with Krabbes Disease. He left his broken body behind on 12/12/08, just six days shy of his 1st birthday. I am a Special Education teacher. My husband is a pediatric nurse. We have been married for 16 years. Together, with the help of many, we have used Grey's life and loss to try to expand Texas' newborn screening program. HB 1795 was signed by Governor Rick Perry on 6/19/09, establishing Greyson's Law. However, it lost it's funding before even one baby was screened. We have established Grey's Gift Memorial Foundation to teach other of the importance of newborn screening.
COunter
3 comments:
So FRIGGIN' awesome Nicole and Bill!!! You two are my heroes.
Thanks for posting this information about your day at the capitol yesterday. It was so cool to see what your family was able to accomplish yesterday. Way to go!
What an awesome job!!! Nicole, you and Bill are such a wonderful voice for this cause. My prayers are with you!
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